6f70d562-8fcf-4ecd-adaf-cbc5800cc326
English
ISO/IEC 8859-1 (also known as Latin 1)
dataset
dataset
NERC EDS Environmental Information Data Centre
Lancaster Environment Centre, Library Avenue, Bailrigg
Lancaster
LA1 4AP
UK
info@eidc.ac.uk
https://eidc.ac.uk/
EIDC website
The Environmental Information Data Centre (EIDC) is the UK's national data centre for terrestrial and freshwater sciences.
information
pointOfContact
2024-03-01T11:27:28
UK GEMINI
2.3
WGS 84
Economic and social data on the impact of human African trypanosomiasis in Eastern Zambia (2004-2014)
2016-12-05
publication
2016-11-07
creation
https://catalogue.ceh.ac.uk/id/6f70d562-8fcf-4ecd-adaf-cbc5800cc326
10.5285/6f70d562-8fcf-4ecd-adaf-cbc5800cc326
doi:
Mwiinde, A.M., Simuunza, M., Namangala, B., Chama-Chiliba, C.M., Anderson, N.E., Machila, N., Welburn, S.C. (2016). Economic and social data on the impact of human African trypanosomiasis in Eastern Zambia (2004-2014). NERC Environmental Information Data Centre 10.5285/6f70d562-8fcf-4ecd-adaf-cbc5800cc326
These data consist of information on economic, social, demographic, cultural, and treatment seeking behaviour collected from former and current human African trypanosomiasis (HAT) patients in Eastern Zambia between 2004 and 2014. There are two data sets. The first dataset consists information on the economic and social impact of HAT. Information on demographics, culture, and treatment seeking behaviour was also collected. Data for this dataset were collected through structured questionnaires administered to patients themselves or their close relatives (care giver). The questionnaires were developed and delivered by experienced researchers from the University of Zambia. The data have been anonymised by removing the names of villages where the patients lived. In total, 64 cases were included in the study. Verbal consent was obtained prior to commencing all questionnaires. The second dataset consists of anonymised transcripts of focus group discussions conducted with health workers, people who have suffered from HAT and their relatives or friends. Seven to ten people were included per discussion group, providing information on concepts, perceptions and ideas relating to the social consequences of HAT. A total of eight focus group discussions were conducted during the study. Focus group discussion data were analysed using inductive approaches and thematic coding carried out by two independent researchers. All transcripts were anonymised and personal identifiers were removed to protect patients' individual data. Verbal consent was obtained prior to commencing all interviews. Focus group interviews were carried out by experienced researchers from the University of Zambia. The data were collected to determine the economic and social consequences of human African trypanosomiasis (HAT) in Eastern Zambia. This research was part of a wider research project, the Dynamic Drivers of Disease in Africa Consortium (DDDAC), and these data contributed to the research carried out by the consortium. The research was funded by NERC project no NE/J000701/1 with support from the Ecosystem Services for Poverty Alleviation Programme (ESPA). Full details about this dataset can be found at https://doi.org/10.5285/6f70d562-8fcf-4ecd-adaf-cbc5800cc326
Dr. Neil Anderson
The University of Edinburgh
enquiries@ceh.ac.uk
pointOfContact
Mwiinde, A.M.
University of Zambia
enquiries@ceh.ac.uk
https://orcid.org/0000-0001-9003-8552
ORCID record
ORCID is an open, non-profit, community-driven effort to create and maintain a registry of unique researcher identifiers and a transparent method of linking research activities and outputs to these identifiers.
information
author
Simuunza, M.
University of Zambia
enquiries@ceh.ac.uk
https://orcid.org/0000-0001-6621-7470
ORCID record
ORCID is an open, non-profit, community-driven effort to create and maintain a registry of unique researcher identifiers and a transparent method of linking research activities and outputs to these identifiers.
information
author
Namangala, B.
University of Zambia
enquiries@ceh.ac.uk
https://orcid.org/0000-0003-1157-247X
ORCID record
ORCID is an open, non-profit, community-driven effort to create and maintain a registry of unique researcher identifiers and a transparent method of linking research activities and outputs to these identifiers.
information
author
Chama-Chiliba, C.M.
University of Zambia
enquiries@ceh.ac.uk
https://orcid.org/0000-0002-8237-3681
ORCID record
ORCID is an open, non-profit, community-driven effort to create and maintain a registry of unique researcher identifiers and a transparent method of linking research activities and outputs to these identifiers.
information
author
Anderson, N.E.
The University of Edinburgh
enquiries@ceh.ac.uk
https://orcid.org/0000-0001-7192-7717
ORCID record
ORCID is an open, non-profit, community-driven effort to create and maintain a registry of unique researcher identifiers and a transparent method of linking research activities and outputs to these identifiers.
information
author
Machila, N.
University of Zambia
enquiries@ceh.ac.uk
https://orcid.org/0000-0002-1149-6166
ORCID record
ORCID is an open, non-profit, community-driven effort to create and maintain a registry of unique researcher identifiers and a transparent method of linking research activities and outputs to these identifiers.
information
author
Welburn, S.C.
The University of Edinburgh
enquiries@ceh.ac.uk
https://orcid.org/0000-0002-9903-7086
ORCID record
ORCID is an open, non-profit, community-driven effort to create and maintain a registry of unique researcher identifiers and a transparent method of linking research activities and outputs to these identifiers.
information
author
NERC EDS Environmental Information Data Centre
enquiries@ceh.ac.uk
custodian
NERC Environmental Information Data Centre
enquiries@ceh.ac.uk
publisher
notPlanned
otherRestrictions
no limitations
otherRestrictions
This resource is made available under the terms of the Open Government Licence
otherRestrictions
© University of Zambia
otherRestrictions
If you reuse this data, you should cite: Mwiinde, A.M., Simuunza, M., Namangala, B., Chama-Chiliba, C.M., Anderson, N.E., Machila, N., Welburn, S.C. (2016). Economic and social data on the impact of human African trypanosomiasis in Eastern Zambia (2004-2014). NERC Environmental Information Data Centre https://doi.org/10.5285/6f70d562-8fcf-4ecd-adaf-cbc5800cc326
textTable
English
utf8
economy
health
2004-03-08
2014-09-14
27.647
33.931
-16.436
-8.766
Comma-separated values (CSV)
NERC EDS Environmental Information Data Centre
info@eidc.ac.uk
distributor
https://data-package.ceh.ac.uk/sd/6f70d562-8fcf-4ecd-adaf-cbc5800cc326.zip
Supporting information
Supporting information available to assist in re-use of this dataset
information
https://catalogue.ceh.ac.uk/datastore/eidchub/6f70d562-8fcf-4ecd-adaf-cbc5800cc326
Download the data
Download a copy of this data
download
dataset
dataset
Commission Regulation (EU) No 1089/2010 of 23 November 2010 implementing Directive 2007/2/EC of the European Parliament and of the Council as regards interoperability of spatial data sets and services
2010-12-08
Previous and current patients of human African trypanosomiasis (HAT) were recruited from areas of Zambia where the disease was known to occur. All patients who had been diagnosed with the disease from 2004 to 2014 in Lusaka, Eastern and Muchinga Provinces of Zambia were included in the study. Active cases of HAT were confirmed using polymerise chain reaction (PCR) and/or loop mediated isothermal amplification (LAMP). Old cases of the disease were determined from hospital registers and / or the community. Where possible, hospital records of patients who were interviewed were retrieved to confirm the time period patients were undergoing treatment. Structured questionnaires were administered to patients themselves or their close relatives (care giver) to collect information on the economic and social impact of HAT in the communities or districts. Information on demographics, culture, and treatment seeking behaviour was also collected. Verbal consent was obtained prior to commencing all questionnaires. The questionnaires were developed and delivered by experienced researchers from the University of Zambia. Data from the questionnaires were collated into an Excel spreadsheet and exported as a comma separated value file. The names of the villages were removed from the final data set in order to anonymise the data. Focus group discussions were conducted with health workers, people who have suffered from HAT and their relatives or friends. Focus group interviews were carried out by experienced researchers from the University of Zambia. Seven to ten people were included per discussion group, providing information on concepts, perceptions and ideas relating to the social consequences of HAT. A total of eight focus group discussions were conducted during the study in all the districts, two in Chama, one in Mambwe, two in Mpika and three in Rufunsa. Focus group discussion data were analysed using inductive approaches and thematic coding carried out by two independent researchers. All transcripts were anonymised and personal identifiers were removed to protect patients' individual data. Verbal consent was obtained prior to commencing all interviews. Focus group interviews were carried out by experienced researchers from the University of Zambia. The resulting transcripts entered into Microsoft Word and coded manually to enable us to analyse the data and pick out narratives within the content. The transcripts were stored at the University of Zambia as Word documents. To meet the requirements of the Environmental Information Data Centre the Microsoft Word document was anonymised and converted into Rich Text Format (rtf).