6f70d562-8fcf-4ecd-adaf-cbc5800cc326 English ISO/IEC 8859-1 (also known as Latin 1) dataset dataset NERC EDS Environmental Information Data Centre Lancaster Environment Centre, Library Avenue, Bailrigg Lancaster LA1 4AP UK info@eidc.ac.uk https://eidc.ac.uk/ EIDC website The Environmental Information Data Centre (EIDC) is the UK's national data centre for terrestrial and freshwater sciences. information pointOfContact 2025-11-13T16:18:54 UK GEMINI 2.3 WGS 84 Economic and social data on the impact of human African trypanosomiasis in Eastern Zambia (2004-2014) 2016-12-05 publication 2016-11-07 creation https://catalogue.ceh.ac.uk/id/6f70d562-8fcf-4ecd-adaf-cbc5800cc326 10.5285/6f70d562-8fcf-4ecd-adaf-cbc5800cc326 doi: Mwiinde, A.M., Simuunza, M., Namangala, B., Chama-Chiliba, C.M., Anderson, N.E., Machila, N., Welburn, S.C. (2016). Economic and social data on the impact of human African trypanosomiasis in Eastern Zambia (2004-2014). NERC Environmental Information Data Centre 10.5285/6f70d562-8fcf-4ecd-adaf-cbc5800cc326 These data consist of information on economic, social, demographic, cultural, and treatment seeking behaviour collected from former and current human African trypanosomiasis (HAT) patients in Eastern Zambia between 2004 and 2014. There are two data sets. The first dataset consists information on the economic and social impact of HAT. Information on demographics, culture, and treatment seeking behaviour was also collected. Data for this dataset were collected through structured questionnaires administered to patients themselves or their close relatives (care giver). The questionnaires were developed and delivered by experienced researchers from the University of Zambia. The data have been anonymised by removing the names of villages where the patients lived. In total, 64 cases were included in the study. Verbal consent was obtained prior to commencing all questionnaires. The second dataset consists of anonymised transcripts of focus group discussions conducted with health workers, people who have suffered from HAT and their relatives or friends. Seven to ten people were included per discussion group, providing information on concepts, perceptions and ideas relating to the social consequences of HAT. A total of eight focus group discussions were conducted during the study. Focus group discussion data were analysed using inductive approaches and thematic coding carried out by two independent researchers. All transcripts were anonymised and personal identifiers were removed to protect patients' individual data. Verbal consent was obtained prior to commencing all interviews. Focus group interviews were carried out by experienced researchers from the University of Zambia. The data were collected to determine the economic and social consequences of human African trypanosomiasis (HAT) in Eastern Zambia. This research was part of a wider research project, the Dynamic Drivers of Disease in Africa Consortium (DDDAC), and these data contributed to the research carried out by the consortium. The research was funded by NERC project no NE/J000701/1 with support from the Ecosystem Services for Poverty Alleviation Programme (ESPA). Full details about this dataset can be found at https://doi.org/10.5285/6f70d562-8fcf-4ecd-adaf-cbc5800cc326 Anderson, N. The University of Edinburgh Neil.Anderson@ed.ac.uk pointOfContact Mwiinde, A.M. University of Zambia mayabamwiinde@gmail.com https://orcid.org/0000-0001-9003-8552 ORCID record ORCID is an open, non-profit, community-driven effort to create and maintain a registry of unique researcher identifiers and a transparent method of linking research activities and outputs to these identifiers. information author Simuunza, M. University of Zambia martin.simuunza@unza.zm https://orcid.org/0000-0001-6621-7470 ORCID record ORCID is an open, non-profit, community-driven effort to create and maintain a registry of unique researcher identifiers and a transparent method of linking research activities and outputs to these identifiers. information author Namangala, B. University of Zambia b.namangala@unza.zm https://orcid.org/0000-0003-1157-247X ORCID record ORCID is an open, non-profit, community-driven effort to create and maintain a registry of unique researcher identifiers and a transparent method of linking research activities and outputs to these identifiers. information author Chama-Chiliba, C.M. University of Zambia chitalu.chiliba@unza.zm https://orcid.org/0000-0002-8237-3681 ORCID record ORCID is an open, non-profit, community-driven effort to create and maintain a registry of unique researcher identifiers and a transparent method of linking research activities and outputs to these identifiers. information author Anderson, N.E. The University of Edinburgh Neil.Anderson@ed.ac.uk https://orcid.org/0000-0001-7192-7717 ORCID record ORCID is an open, non-profit, community-driven effort to create and maintain a registry of unique researcher identifiers and a transparent method of linking research activities and outputs to these identifiers. information author Machila, N. University of Zambia noreenmachila@yahoo.co.uk https://orcid.org/0000-0002-1149-6166 ORCID record ORCID is an open, non-profit, community-driven effort to create and maintain a registry of unique researcher identifiers and a transparent method of linking research activities and outputs to these identifiers. information author Welburn, S.C. The University of Edinburgh Sue.Welburn@ed.ac.uk https://orcid.org/0000-0002-9903-7086 ORCID record ORCID is an open, non-profit, community-driven effort to create and maintain a registry of unique researcher identifiers and a transparent method of linking research activities and outputs to these identifiers. information author NERC EDS Environmental Information Data Centre info@eidc.ac.uk custodian NERC Environmental Information Data Centre info@eidc.ac.uk publisher notPlanned Trypanosoma brucei Wikidata 2012-10-29 creation Zambia GeoNames 2006-01-01 creation Dynamic Drivers of Disease in Africa Consortium DDDAC otherRestrictions no limitations otherRestrictions This resource is made available under the terms of the Open Government Licence otherRestrictions © University of Zambia otherRestrictions If you reuse this data, you should cite: Mwiinde, A.M., Simuunza, M., Namangala, B., Chama-Chiliba, C.M., Anderson, N.E., Machila, N., Welburn, S.C. (2016). Economic and social data on the impact of human African trypanosomiasis in Eastern Zambia (2004-2014). NERC Environmental Information Data Centre https://doi.org/10.5285/6f70d562-8fcf-4ecd-adaf-cbc5800cc326 textTable English utf8 economy health 2004-03-08 2014-09-14 27.647 33.931 -16.436 -8.766 Comma-separated values (CSV) NERC EDS Environmental Information Data Centre info@eidc.ac.uk distributor https://data-package.ceh.ac.uk/sd/6f70d562-8fcf-4ecd-adaf-cbc5800cc326.zip Supporting information Supporting information available to assist in re-use of this dataset information https://catalogue.ceh.ac.uk/datastore/eidchub/6f70d562-8fcf-4ecd-adaf-cbc5800cc326 Download the data Download a copy of this data fileAccess dataset dataset Commission Regulation (EU) No 1089/2010 of 23 November 2010 implementing Directive 2007/2/EC of the European Parliament and of the Council as regards interoperability of spatial data sets and services 2010-12-08 Previous and current patients of human African trypanosomiasis (HAT) were recruited from areas of Zambia where the disease was known to occur. All patients who had been diagnosed with the disease from 2004 to 2014 in Lusaka, Eastern and Muchinga Provinces of Zambia were included in the study. Active cases of HAT were confirmed using polymerise chain reaction (PCR) and/or loop mediated isothermal amplification (LAMP). Old cases of the disease were determined from hospital registers and / or the community. Where possible, hospital records of patients who were interviewed were retrieved to confirm the time period patients were undergoing treatment. Structured questionnaires were administered to patients themselves or their close relatives (care giver) to collect information on the economic and social impact of HAT in the communities or districts. Information on demographics, culture, and treatment seeking behaviour was also collected. Verbal consent was obtained prior to commencing all questionnaires. The questionnaires were developed and delivered by experienced researchers from the University of Zambia. Data from the questionnaires were collated into an Excel spreadsheet and exported as a comma separated value file. The names of the villages were removed from the final data set in order to anonymise the data. Focus group discussions were conducted with health workers, people who have suffered from HAT and their relatives or friends. Focus group interviews were carried out by experienced researchers from the University of Zambia. Seven to ten people were included per discussion group, providing information on concepts, perceptions and ideas relating to the social consequences of HAT. A total of eight focus group discussions were conducted during the study in all the districts, two in Chama, one in Mambwe, two in Mpika and three in Rufunsa. Focus group discussion data were analysed using inductive approaches and thematic coding carried out by two independent researchers. All transcripts were anonymised and personal identifiers were removed to protect patients' individual data. Verbal consent was obtained prior to commencing all interviews. Focus group interviews were carried out by experienced researchers from the University of Zambia. The resulting transcripts entered into Microsoft Word and coded manually to enable us to analyse the data and pick out narratives within the content. The transcripts were stored at the University of Zambia as Word documents. To meet the requirements of the Environmental Information Data Centre the Microsoft Word document was anonymised and converted into Rich Text Format (rtf).