Identification info

Metadata Language

English (en)

Character set

utf8

Dataset Reference Date ()

2016-12-05

Dataset Reference Date ()

2016-11-07

Identifier

https://catalogue.ceh.ac.uk/id/6f70d562-8fcf-4ecd-adaf-cbc5800cc326

Identifier

doi: / 10.5285/6f70d562-8fcf-4ecd-adaf-cbc5800cc326

Other citation details

Mwiinde, A.M., Simuunza, M., Namangala, B., Chama-Chiliba, C.M., Anderson, N.E., Machila, N., Welburn, S.C. (2016). Economic and social data on the impact of human African trypanosomiasis in Eastern Zambia (2004-2014). NERC Environmental Information Data Centre 10.5285/6f70d562-8fcf-4ecd-adaf-cbc5800cc326

Maintenance and update frequency

notPlanned

Wikidata

• Trypanosoma brucei

GeoNames

• Zambia

Keywords

• Dynamic Drivers of Disease in Africa Consortium
• DDDAC
• Human African Trypanosomiasis
• HAT
• Social and economic burden
• Social sciences

Limitations on Public Access

otherRestrictions

Other constraints

Registration is required to access this data

Use constraints

otherRestrictions

Other constraints

This resource is made available under the terms of the Open Government Licence

Use constraints

otherRestrictions

Other constraints

© University of Zambia

Use constraints

otherRestrictions

Other constraints

If you reuse this data, you should cite: Mwiinde, A.M., Simuunza, M., Namangala, B., Chama-Chiliba, C.M., Anderson, N.E., Machila, N., Welburn, S.C. (2016). Economic and social data on the impact of human African trypanosomiasis in Eastern Zambia (2004-2014). NERC Environmental Information Data Centre https://doi.org/10.5285/6f70d562-8fcf-4ecd-adaf-cbc5800cc326

Spatial representation type

textTable

Topic category

• Economy
• Health

N

S

E

W

Begin date

2004-03-08

End date

2014-09-14

Code

WGS 84

Distribution Information

Data format

• Comma-separated values (CSV) ()

Quality Scope

dataset

Other

dataset

Statement

Previous and current patients of human African trypanosomiasis (HAT) were recruited from areas of Zambia where the disease was known to occur. All patients who had been diagnosed with the disease from 2004 to 2014 in Lusaka, Eastern and Muchinga Provinces of Zambia were included in the study. Active cases of HAT were confirmed using polymerise chain reaction (PCR) and/or loop mediated isothermal amplification (LAMP). Old cases of the disease were determined from hospital registers and / or the community. Where possible, hospital records of patients who were interviewed were retrieved to confirm the time period patients were undergoing treatment. Structured questionnaires were administered to patients themselves or their close relatives (care giver) to collect information on the economic and social impact of HAT in the communities or districts. Information on demographics, culture, and treatment seeking behaviour was also collected. Verbal consent was obtained prior to commencing all questionnaires. The questionnaires were developed and delivered by experienced researchers from the University of Zambia. Data from the questionnaires were collated into an Excel spreadsheet and exported as a comma separated value file. The names of the villages were removed from the final data set in order to anonymise the data. Focus group discussions were conducted with health workers, people who have suffered from HAT and their relatives or friends. Focus group interviews were carried out by experienced researchers from the University of Zambia. Seven to ten people were included per discussion group, providing information on concepts, perceptions and ideas relating to the social consequences of HAT. A total of eight focus group discussions were conducted during the study in all the districts, two in Chama, one in Mambwe, two in Mpika and three in Rufunsa. Focus group discussion data were analysed using inductive approaches and thematic coding carried out by two independent researchers. All transcripts were anonymised and personal identifiers were removed to protect patients' individual data. Verbal consent was obtained prior to commencing all interviews. Focus group interviews were carried out by experienced researchers from the University of Zambia. The resulting transcripts entered into Microsoft Word and coded manually to enable us to analyse the data and pick out narratives within the content. The transcripts were stored at the University of Zambia as Word documents. To meet the requirements of the Environmental Information Data Centre the Microsoft Word document was anonymised and converted into Rich Text Format (rtf).

Metadata

File identifier

6f70d562-8fcf-4ecd-adaf-cbc5800cc326 XML

Metadata Language

English (en)

Character set

ISO/IEC 8859-1 (also known as Latin 1)

Resource type

dataset

Hierarchy level name

dataset

Metadata Date

2023-11-09T16:46:22

Metadata standard name

UK GEMINI

Metadata standard version

2.3